Guess who is TWO weeks old today???? This girl!!!
We've been on a little bit of a roller coaster today. Harper is totally off of her meds and IV's but she started having some withdrawl from her pain meds. Our doctor warned us a week ago when this happened she would be irritable. Well - he was right and she's had a tough day. She was pretty mad most of the day. Mommy holding her seemed to help a lot but she would still get upset. She also has been breathing a little hard so they had to put a tube in her nose to feed her. She is getting my milk so that's the good thing - it's just hard to go from bottles or nursing back to a tube.
The grandparents are all back and this was them watching from the window while we held her. I had a small breakdown this morning because I'm just SO scared to take her home where I won't have monitors to watch her heart rate or breathing and I just keep thinking "what if something happens?" I was terrified when I was pregnant thinking about being in charge of a little life but now that she's been sick - it's even scarier. But it's all about the TRUST in God I've been talking about. I had to remind myself that the God who did a miracle and gave me her in the first place and then did another miracle and healed her is the same God who will help me watch over her night and day. Harper likes me to sing to her (even if my singing is bad) and all day I've been singing "Tis so sweet to trust in Jesus". I need to hear that last line over and over - "Oh for grace to trust Him more!"
Our sweet friends - Brad, Amanda and Neely came to visit today. I felt so bad because we were in the midst of a major change when they came so we didn't get to visit much. Neely and Harper will be fast friends in the future I just know! Thank ya'll SO much for coming!!!!
Our big change was this afternoon - a doctor came out and said they had a private room open in the children's hospital and since Harper was doing well (and since our whole family was there in the NICU all day long) - they were going to move Harper there. I was so nervous at first because I was scared to leave the good care of the NICU and I wasn't sure how this would work but I have to tell you - we are so excited. The children's hospital is new and SO nice.
We now have this HUGE room with a flat screen TV and chairs and a couch and a place to keep our stuff and our own bathroom and we can be in the same room with Harper all day long. We can hold her and dress her up and change her as much as we want. And this will help us transition into going home. We still aren't sure when that will be. We got excited and thought it could be in a few days but it may be a couple of weeks instead. I'm totally good with that - I just want her to be 100% healthy when we take her home.
I think we have several visitors coming tomorrow so it should be a busy day! I'm going to get to stay with Harper at night now. Thank for continuing to pray for us! You have all blessed our lives so much!
282 comments:
«Oldest ‹Older 201 – 282 of 282 Newer› Newest»Happy 2 week birthday!!
I am sooo glad you guys have a private room!! That will surely help you to get used to all the things before you go home, it will give you privacy and many special moments with the little princess!!
I will keep praying for her little body!!
I am happy your baby is improving. Good news for the weekend. :)
Sorry the little one hit a rough patch yesterday.
Once she is off those meds, they all have side effects she will feel better.
You hang in there Kelly try to sleep as much as you can.
I know you probley miss your house and your bed, and it will be easier once you are at home.
But you just gave birth and have been going no stop and I worry about you..You need your rest and all the stress you have been under is not good for you..
Take care..
Praise God! That is so wonderful! You have a beautiful family!! Still praying here in SD! Hope today is smoother for Harper.
I am so happy to hear this news! Harper is just gorgeous!!!
Congratulations for the big "2 weeks." She's even more beautiful without all the tubes and wires. You are truly blessed. You'll do fine when you get home. No worries.
She is absolutely gorgeous! I am praying for a peace that passes comprehension for you and your family.
sweet baby girl is moving on up indeed! we know what a HUGE step that is towards going home. there are always steps forward and steps back in the hospital, that is so normal. but she is doing very well and we are rejoicing for these wonderful praises. God gave her the perfect parents for her. remember that wonderful momma! is her crib pink? it is the cutest thing!
your words continue to show us all god's amazing grace and power! :)
yay for your wonderful day!! :)
Happy two weeks Miss Harper and one step closer to going home... Still praying here in Louisiana... Love yall, Susie Harris
Happy two week Birthday Harper!
You will do fine Kelly. You will find a strength you never knew you had. You will totally amaze yourself. I can't wait to read you and your family finally get to go home.
Hello from Maryland. My name is Michele and I have 4 children. My oldest will be 20 and my youngest will be 9. 3 boys and a girl. Our last child- Joshua was very very ill when he was born and was in the critical NICU for about 4 days and was moved to the regular NICU for the remaining 4 days before he came home. It was the scariest time of my life. They had to recussitate him immediately after he was born and I never saw him until he was almost 1 day old. I knew I had a boy and that was it.
He had no lung development and was born 1 month early and weighed 8 lbs 1 oz. He was the largest premie the hospital had ever had. He was critical but he was huge. I was on bed rest with him the last 6weeks of the pregnancy and it was so hard.
Now he will turn 9 in May and is the blessing of my life. He is such a sweet boy and just melts my heart. He is strong, healthy and a fighter they said. He fought- he had the fight of his life. We all did and God knew it all- and was there each step of the way. I look back now and am so amazed how he has and always will be there for us in any time of need.
Hold on to the truth. Lean on Him and your loved ones as you transission home. I know what you mean by being afraid to bring her home. Each day at the NICU I would almost be reieved when they would say not today maybe tomorrow. But like what you said I had to trust God. I had to place Josh in his hands as I did the whole pregnancy and allow God to show me his faithfullness and grace. I will be continuing to pray for you and your family. I have prayed more for strangers this new year than ever since I read these blogs. What a blessing to now you have complete strangers but members of God's family- your extended family-praying and loving all of you.
GOD BLESS,
Michele Stewart
Please if you ever need encouragement or just to ask questions, please do not hestitate to email me. I would love to help.I will continue to pray for you all.
Mstewart222@Yahoo.com
Yey, thats amazing!
Well done to Harper!!! Two weeks old already, she looks precious!
Sam
Such a beautiful little girl, you have!! I have been praying for her and my heart has been blessed to watch her progress improving everyday! YOU, have really blessed me as well, with your outlook and trust in the Lord! Thanks!
We're still without power, but we've been thinking about you and praying for y'all constantly!! I LOVE all the pictures you're posting. That Harper is one beautiful baby!!
So glad you're in a room with H now! What a blessing!
Congrats on the great news! Enjoy that BEAUTIFUL baby and we'll keep praying! I don't know you or your family but I feel as if I do and I think about you and Harper all the time! Love and prayers!
I love seeing you hold that baby!
Your sweet baby girl is so beautiful, just like her parents. Praying that she will be 100% healthy soon.
Love,
Elizabeth H.
This is wonderful news! I'm so happy for all of you. Harper is so beautiful! You're still in my prayers, I think of you often.
Kelly, I'm not sure how you ever read all of these, but I wanted to share. When I had my first baby, the first night at home was nerve-wracking! Every time Jackson moved I woke up, and then I realized...the same God who gave me this precious child is the same God who could take him away as He saw fit. And I trusted God to know what was best. It was at that point that I gave up worrying and started trusting that not only was I going to do my best to take care of this baby, but I was going to trust that God was God and He was in control and I was not. It's all about perspective. So proud for you!
God will prepare you for exactly what Harper needs when she goes home with you and your husband...it is amazing how good He truly is...He knows you and would never give you anymore than you can bear...remember He has all three of you wrapped up in His loving arms and He will never forsake your family:)Keep your faith:)
Congratulations on moving up and getting a private room:) I have so glad to hear of the progress. You little girl is so sweet and precious:) God Bless- sending prayer and ((hugs)) your way!
She is just so adorable. I know you are glad to get to stay with her at night. Praying for you all.
Yet another blessing! Not only is she improving but you get a chance to test out your independance as a mom before you get to take her home! Still praying and rejoicing for you!
Your little baby girl is absolutely beautiful -- so happy that she's healing and growing strong. God is so good.
Hi Kelly, this is Karen. Your cousin of some degree of remove-ed-ness. My mom, Linda, would be your great aunt and your dad is my cousin. Mom sent me the link to your blog and I've been following Harpers progress. I'm just so thrilled that she is doing better. She is absolutely gorgeous. No worries about being told about her cute little hands and feet! Congratulations on your beautiful baby girl. You have our prayers.
Look at that precious girl!!! I'm so glad that you guys have been able to move on up to your new room and out of the NICU...God has answered our prayers amazingly.
Still praying for y'all!!
Hi..I found your blog through "Bring the Rain". We are praying for Harper every day. We pray that you guys will be home soon with your little bundle of joy. Sending lots of love from Georgia.
Sabrina Carter
www.caringbridge.org/visit/mackensiegracecarter
Happy 2 weeks birthday sweet Haper! Kelly, I'm so glad to hear that Harper is doing so much better. Praying for her full recovery and healing and for you to take her home soon.
Bethany in Ca.
God is good! I am so happy to see Harper making such great steps toward recovery.
Sorry to hear about the withdrwals. In my experience (as a NICU RN) the best treatment for a withdrawling baby is beign held by mommy or daddy. Hang in there. You are on the home stretch!
praying for baby Harper, you, and your family
Kelly,
When you bring Harper home, it will be a change...my daughter was in the NICU for 135 days, and I don't think I slept at all the first few nights we were home.
She slept in a Pack and Play right next to my side of the bed for a few weeks. We moved her into her crib for naps during the day until we felt comfortable having her sleep in her crib at night.
We have a full-size bed in her room, so we roomed in for a few more weeks. :) Just last night we moved back into our own room...
Don't worry...your mom instinct will kick in and you'll do great. Having a hands-on dad is wonderful, too!
your lil girl is so beautiful.. you could request a puls ox machine then if she does well, just send it back.. you can have docs give you a priscription.. god bless you and your lil one..
so happy she's in a big room! i will email you, but in case you read this and get a chance to post...are you still getting mail at the same address now that you've moved?
Yeah! What a great step in the right direction. I'm so proud of the faith you have - it is amazing! You inspire me to be closer to God.
You look so beautiful. Your smile lights up the room. I'm sure your daughter loves looking at you and is thinking "My Mom is so pretty!"
Enjoy your baby love.
Praise God for such wonderful news!!!!!! Continuing to pray for all of you, and for you, that God would give you the peace that you need....we love you!
I am so thrilled for both of you to be able to finally be able to sleep in the same room with your baby, begin nursing and starting to transform so you can take her home with you. I am still praying for you and your family daily. I love reading your blog, it makes me so happy to have some time to read all the favorite blogs, yours inparticular. I am sorry for all the challenges that you have faced. your courage is inspirational and uplifting. What an amazing family you have. To GOD be the GLORY. I continue to pray for your family and precious baby girl! Keep the updates coming.. we love to hear all the new things you all are experiencing.
Kelly,
I know you don't know me but I have been following your blog and praying for you and little Harper. I just read what you wrote today about being scared to take her home and want to share something with you that has made all the difference to us. I had a HUGE struggle the first week we brought our son home- he was 6 weeks early and only 4 lbs and 11oz when we came home. We had spent a week in the hospital where he was watched and monitored 24/7 by nurses. When we came home I watched him every second that he slept (in a bassinet in our room) and was soooo afraid he would stop breathing and die. I've always worried about SIDS but never thought that I would literally make myself sick over it. I love the Lord, trust Him completely and know that He has our best interests at heart. I would literally beg the Lord and pray all night that nothing would happen to our baby-it was terrible. Well we ended up ordering a monitor called AngelCare made by BebeSounds that has a pad you put under his mattress that monitors his every movement/breath and if there is no movement for 20 seconds an alarm goes off! It has truly been a blessing to us and works perfectly. We have not had any false alarms and the only time the alarm has gone off is when I've picked him up and forgotten to turn it off. I ordered it from BabiesRUs (we don't have one here or you could buy it from the store) and I got the deluxe version that monitors movement and sound- so its the only monitor you need. They are around $140- but worth every penny. I'd rather have this monitor than anything else baby-related.
I know it may seem a little paranoid but this monitor has truly been an incredible blessing to us. Hope you might find this information useful! Please feel free to email me at hannahspires1@yahoo.com if you have any questions.
Sincerely,
Hannah Spires
(a young preacher's wife in SC!)
Such exciting news about the private room! Harper is absolutely gorgeous, what a blessing she is to not only your family but to all that have heard her story!! She is a true testament to God's greatness! I'll keep praying for you all daily!
-Toni
I haven't left a comment for awhile but I do check in everyday. I am so glad to see that Harper is progressing so well and really excited for you that you have your own room!!!! That has to be so nice, now you can be with her all the time.
Still praying in frozen Ohio
It's difficult to take a pefectly healthy baby home the 1st time so don't be hard on yourself. I'll never forget how scared I was! God does love her even more than you do (hard to imagine, I know) and He will be there for you and for Scott and that beautiful little girl. You are also blessed with family and friends who will also be there for you all. Before long you will be a pro and because you went through this time, you will be so strong! God bless!
God bless you and your family! Trust in God always!
I discovered your blog about 2 weeks ago and I have been praying for Harper.
We went thru something with my son about 9 years ago when it was discovered he had congenital heart defects. Very scary time but God was with us. My son is now a happy and healthy 13 year old. Praise Jesus!
I will keep Harper in my prayers! You are a wonderful mother!
Take care and God bless you always!
Hi Kelly,
Your daughter is just absolutely adorable!! I'm so glad to read that she's doing better each day.
You all make such a beautiful family!!
I couldn't help but read your blog from the very beginning. One thing we have in common is FOOD!! I definitely noticed a trend in your post with talks about food. =)
Thanks for sharing some of your recipes will definitely be using them.
God Bless & Love to you and your family!
The Angelcare Monitor is a lifesaver. We have one for our baby. It is a motion sensor monitor and is so sensitive it picks up their respirations and alarms if their is no movement for 15 seconds. It will help you sleep!!
http://www.amazon.com/B%C3%A9b%C3%A9Sounds-Angelcare-Movement-Blister-Package/dp/B00005NBE5/ref=pd_bbs_sr_8?ie=UTF8&s=baby-products&qid=1233461462&sr=8-8
Praise Him from whom all blessings flow! Still lifting that sweet bundle up! Happy two weeks to you all!
Katie Snow
Millbrook, AL
What a nice room! I bet you're starting to feel more like a little family now.:) This is wonderful! She is beautiful.
Kelly I just can't get over how beautiful she is! I'm so happy for ya'll & praying that Harper continues to get better & better.
<3 Bonnie
Oh how I remember those days. I absolutely believe God has Harper in His hands, but if you'd like a little additional comfort, I can tell you from experience that the Angel Care baby monitor truly was the greatest blessing I could have had throughout my daughter's infancy. She was almost 2 mos premature and had some other issues so we spent almost a month in the NICU. The NIGHT before we were to be discharged they discovered she had a severe apnea episode (thank You Jesus for protection) and we were delayed a bit and she went home on an apnea monitor. Someone blessed us with an Angel Care monitor as well and in my paranoid state I used them both. There were times the AC monitor alarm went off prior to the hospital apnea monitor. If I had the resources I would buy one for every Mom with a NICU baby I am that convinced it works and it was well worth my piece of mind. Praying for you and your precious Harper.
Hope you're off having fun holding that precious little one to update!
"I'm but a stranger here, Heav'n is my Home"...one of my favorite hymns. It's such a comforting thought! Know that I'm praying!
2 Corinthians 4:16-18 For which cause we faint not; but though our outward man perish, yet the inward man is renewed day by day. For our light affliction, which is but for a moment, worketh for us a far more exceeding and eternal weight of glory; While we look not at the things which are seen, but at the things which are not seen: for the things which are seen are temporal; but the things which are not seen are eternal.
Prayer Bears
My email address
Kelly I love the progress notes. Go Harper GO!! :) What a blessing to see her getting better. You both will learn together...hang in there.
Still praying.
After they took my daughter off of the NICU machines in December, I felt the same way. I was so scared because I couldn't monitor what was going on. I didn't know what would happen at home. Then, I got home and everything fell into place. What a joy it was to just hold my little girl with no restrictions or tubes or anything. Although, like you, I have to say we had the most wonderful nurses ever! I will be forever grateful to them for all that they did!
I hope today is another great day for you all!
That is absolutely fantastic! I'm so thankful, what a beautiful blessing from the Lord. You are a step closer to taking her home! I am praying for your confidence in that area as well. The unknown is scary and bringing a newborn home for the first time is unknown and adding to it that she has been sick. I understand your fears. I will take them to the Father for you. God is good. And you are such a wonderful mother already. Harper is blessed to have you too!
Harper is incredibly alert for a 2 week old...especially for one who's been thru as much as she has! What a sweetie pie!
I just wanted to mention a monitor you may be interested in getting when you come home: http://www.amazon.com/B%C3%A9b%C3%A9Sounds-Angelcare-Movement-Monitor-Parents/dp/B0000E262S
It has a sensor pad that you put underneath the crib mattress -- it's supposed to sense any movement from the baby (and they're constantly in a little bit of motion even when it seems like they're not) as they sleep, which means you can get good sleep!
I would never be able to sleep (or leave the room she's sleeping in:) unless I had this in my 5 month old's crib, cuz I'm terrified of not knowing if she stopped breathing...this offers so much peace of mind to me.
Anyway, just thought you might want to get one when you go home, so that you can sleep knowing it will let you know if Harper needs a little jostle to remember to breathe deeply:)
She is absolutely beautiful! Praise God that she is doing so well and prayig for her to get over the hump of weaning off the pain meds as quick as possible.
I don't post many comments, but I want you to know that I am praying for you. You are a beautiful family. I wish I were close enough to pop in for a visit. Harper will remain on our prayer list and I am lifting you all up every time Jesus brings you to mind! Love in Christ, Shelby
God is so amazingly AWESOME! Been following your blog and praying for Harper and all your family during this time. What a faith-builder this is for all of us as well! I understand the fear you're experiencing as you think of the responsibility once home with Harper. Here's another song you can sing to yourself and to sweet, precious Harper. "God will take care of you - through every day, o'er all the way. He will take care of you. God will take care of you." God bless you!
Oh she is just the cutest little thing ever! I have only boys...so I can say that she is just the prettiest little girl yet! Really, her in that flower head-band, and holding the puppy, and her eyes wide open, she is a keeper! I'm a total stranger, but I've been praying for her by name...you're such a cute little family! It's wonderful to see a miracle happen, I'll be praying as you prepare to go home that God will give you peace & comfort not to worry. Again, I could just eat her little precious face up with kisses! Babies are such a blessing!~heidi
Yeah for the room. Slow transitions will help you make it home. Your trust in God and Faith is an inspiration to us all.
Wonder news on Harper's big move! It can be a bit scary moving away from the constant attention of a NICU but you will enjoy your new room I am sure. You will do great when she finally comes home trust yourself! (and I have been there done that myself, my son was born with a severe heart defect and had open heart surgery at 3 days old) Praying Harper has a better day being off the pain meds.
What fantastic news to hear this morning. I know you will enjoy bonding with her more and more now that you're in a private room. Hillary and Josh were supposed to drop in on you this weekend. Hope they made it and that you enjoyed your visit.
'Tis so sweet wto trust in Jesus' Harper, you, and your family have been in thoughts and prayers... I can't believe how big she is getting! I'm so happy for you and your beautiful little girl!
God Bless
I've been checking your site every few days to see how Harper is doing. She looks awesome!! Isn't it amazing the difference a nasal cannula can make versus those yucky ET tubes? She is just gorgeous and looks so alert! Keep up the good work, Mommy:) I am praying for you!
Yea moving to your own room is a HUGE step! Congrats! Don't worry too much about going home with her. You will do great. I will continue to keep you in my prayers!
I cry every time I see your baby girl's big eyes. That is so exciting to see how good she is doing, and to have your own room! What a blessing. Your blog takes me back to my daughter's NICU days, the joys and the struggles. God is working in her life and it is so exciting to read about your journey.
Kelly, I found your blog thru Angie Smith's blog, and a friend also told me about it. I am so happy that Harper is doing well.
I have been just a reader until today, but felt that I needed to share the same encouragement that was given to me. My DD was premature and on a vent and oxygen too. I remember how scary the thought of not having the monitors would be. One of the nurses gently reminded me of how many times they go off in error, and told me that my motherly instincts would be more accurate than the monitors. The same is true for you and Harper! You will be just fine, it takes faith and I know how hard that is b/c of our silly human nature. Michelle
i am so thankful for Harper. You guys have been a very inspirational family. i have learned so much from this situation. thank you Harper =]
This is wondrful and you are gong to be great mother!
Just be reassured that they won't send her home until she is ready and then you can treat her just like any other baby. She is absolutely beautiful!!!
I am so thankful and grateful that your little girl is doing so much better. I have said many prayers for the 3 of you. You have touched so many people--God works in amazing ways!
I just wanted to let you know that even if the hospital doesn't send you home with something to monitor her breathing, there are special monitor pads that you can buy to place under her sheet that will set off an alarm if she stops breathing. My sister had one for her baby just because it made her feel better at night (she worried about SIDS). It worked well for her. I'm sure Babies R Us or a similar store probably carries them.
God Bless!
Linda
Oh Sweetie! I'm just so glad to see that Harper is doing better, and eating well. I can't come to your blog without crying! I will continue to pray for you all!
Angie
Hoping that no news is good news and things are still going well for Harper. Still praying!
She is looking a lot like her mommy now too!
I'm not actually sure how I came across your blog but I have been following for a week. I'm so glad Harper is doing so well and it is a blessing to see your trust in the Lord. Your family is in my prayers.
Kelly,
There is a machine that your doctor has to write a perscription for that will monitor her heart and lungs when you go home. It definitely gives you peace of mind. My little boy wore it when he had RSV, but I can't remember the name of it.
So glad she's getting better! God is soooo good!
What a beautiful blessing!! Dan and I are so happy for you and are praying that little Harper will continue to grow stronger every day. Love and prayers. Linda Heep
When Alicen came home from the NICU she was on O2 and heart/apnea monitor for almost 3 months. The first time that thing alarmed I jumped off the couch and was all tangled in the sheet and blanket. Turned out that it was the lead fell off. Congrats on the move. She is the sweetest looking little girl. Looks like she is smiling in several of the pics. Enjoy.
Hey Kelly,
it's Denise. She sure is a blessing and the Lord is good. We know this so very well. Harper is very cute and I personally think she looks JUST LIKE YOU! I am so glad that things are going well for her and that you and Scott are getting more quality time with her. I know how difficult it is to not be able to be all hands on and how much it means when you finally get to. We continue to pray for Harper and you from coast to coast. Hope to see you soon. HI SCOTT!!!!
I am so thankful that Harper is doing so well. I have been praying for you guys. You mentioned that you will miss the monitors. Do you have an Angel Monitor? It's a great invention that should give you some peace of mind about her breathing. Just thought I would mention it.
My prayers (and praises) continue!
I was scared to bring my son home from the NICU as well. Being born at 3 lbs 3 ozs ten weeks early didn't help. But then he was 5 lbs 3ozs and they said we could go home. Without the monitors I just knew I would be a nervous wreck. The hospital was kind enough to send me home with a portable monitor. It really helped my peace of mind!!
I randomly came across your blog- I don't remember how I got here and will credit the grace of God. What a beautiful and encouraging story. Little Miss Harper is a miracle to behold! Bless you and your family. I will keep you in my prayers!
I've been following this blog but there have been no updates in over 2 weeks. Is everything okay with little Harper?
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